Mesothelioma palliative care needs: supporting patients and families with new research-based resources.
- Resource Type
- Academic Journal
- Authors
- Hargreaves S; Mesothelioma UK Research Centre, Health Sciences School, University of Sheffield, Sheffield, South Yorkshire, UK.; Gardiner C; Mesothelioma UK Research Centre, Health Sciences School, University of Sheffield, Sheffield, South Yorkshire, UK.; Tod A; Mesothelioma UK Research Centre, Health Sciences School, University of Sheffield, Sheffield, South Yorkshire, UK.; Darlison L; University Hospitals of Leicester, Leicester, Leicestershire, UK.
- Source
- Publisher: MA Healthcare Ltd Country of Publication: England NLM ID: 9815827 Publication Model: Print Cited Medium: Internet ISSN: 1462-4753 (Print) Linking ISSN: 14624753 NLM ISO Abbreviation: Br J Community Nurs
- Subject
- Language
- English
- ISSN
- 1462-4753
Background: Mesothelioma is a rare cancer without cure. Clinical guidelines recommend the timely provision of palliative/supportive care; however, a new study identified barriers to achieving this ambition.
Objective: The study aimed to explore palliative care needs and the role of Mesothelioma Clinical Nurse Specialists (MCNSs); and to develop resources to address study findings.
Methods: The mixed-methods study included a literature review, focus groups, interviews and surveys.
Results: The study highlighted the important role of the MCNSs in palliative care and the need to: address disjointed care; improve support for families; and explain the benefits of palliative care for patients/families. A co-production approach developed an animation for patients/families to demystify palliative care and explain the benefits of early-stage engagement; and an infographic targeted at community and primary care professionals. Recommendations for community nursing practice are described.