000
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camKi |
001
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2210080897551 |
003
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OCoLC |
005
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20210225115040 |
006
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m d |
007
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cr cnu---unuuu |
008
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200702s1996 nju ob 001 0 eng d |
020
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▼a9780691214702▼q(electronic bk.) |
020
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▼a0691214700▼q(electronic bk.) |
020
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▼z0691027838 |
020
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▼z9780691027838 |
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▼z0691050791 |
020
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▼z9780691050799 |
035
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▼a2461284▼b(N▼T) |
035
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▼a(OCoLC)1162817285 |
037
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▼a22573/ctv10wz5f1▼bJSTOR |
040
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▼aJSTOR▼beng▼erda▼epn▼cJSTOR▼dN▼d221008 |
050
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▼aBF789.D4▼bB635 1996eb |
060
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▼a1996 L-823 |
060
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▼aWI 820▼bB658i 1996 |
072
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▼aMED▼x069000▼2bisacsh |
082
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▼a155.9/16▼222 |
084
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▼a77.21▼2bcl |
100
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▼aBluebond-Langner, Myra,▼d1948- |
245
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00 |
▼aIn the shadow of illness :▼bparents and siblings of the chronically ill child /▼cby Myra Bluebond-Langner. |
260
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▼aPrinceton, N.J. :▼bPrinceton University Press,▼c짤1996. |
300
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▼a1 online resource (xvii, 302 pages) |
336
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▼atext▼btxt▼2rdacontent |
337
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▼acomputer▼bc▼2rdamedia |
338
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▼aonline resource▼bcr▼2rdacarrier |
504
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▼aIncludes bibliographical references (pages 275-294) and index. |
505
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▼tThe Impact of Cystic Fibrosis on Well Siblings --▼tApproaches to the Study of Well Siblings --▼tAn Ethnographic Approach --▼tA Framework for Analysis --▼tPortraits in Waiting: Nine Families --▼tThe Daleys --▼tThe Shermans --▼tThe Farringtons --▼tThe Campbells --▼tThe Reynoldses --▼tThe Chases --▼tThe Woodwards --▼tThe Fosters --▼tThe Baileys --▼tContaining the Intrusion --▼tParents' Responses to the Care the Ill Child Requires and the Concerns the Child's Condition Engenders --▼tIssues and Strategies --▼tStrategies, Normalcy, and Control --▼tWell Siblings' Views of Cystic Fibrosis and Their Ill Siblings' Condition --▼tWell Siblings' Views --▼tFormation of Well Siblings' Views --▼tWell Siblings' Relationships with Parents and Ill Siblings --▼tResources and Communication --▼tThe Well Siblings' Position in the Family --▼tAfterword: Meeting the Needs of the Well Sibling --▼tGeneral Guide lines for Clinical Intervention --▼tCommunication in the Family: The Case for "Shuttle Diplomacy." |
520
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▼aThe Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness - from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill. |
588
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▼aPrint version record. |
590
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▼aAdded to collection customer.56279.3 |
650
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▼aDeath▼xPsychological aspects▼vCase studies. |
650
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▼aParents of terminally ill children▼vCase studies. |
650
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▼aBrothers and sisters▼xDeath▼xPsychological aspects▼vCase studies. |
650
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▼aTerminally ill children▼xFamily relationships▼vCase studies. |
650
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▼aCystic fibrosis▼xPsychological aspects▼vCase studies. |
650
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▼aParents of terminally ill children▼xCase studies. |
650
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▼aCystic Fibrosis▼xpsychology.▼0(DNLM)D003550Q000523 |
650
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▼aParent-Child Relations.▼0(DNLM)D010287 |
650
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▼aSibling Relations.▼0(DNLM)D012801 |
650
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▼aTerminally ill children▼xFamily relationship▼xCase studies. |
650
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▼aMort▼xAspect psychologique▼xCas, E?tudes de. |
650
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▼aParents d'enfants malades en phase terminale▼xCas, E?tudes de. |
650
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▼aFre?res et s흹urs▼xMort▼xAspect psychologique▼xCas, E?tudes de. |
650
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▼aEnfants malades en phase terminale▼xRelations familiales▼vCas, E?tudes de. |
650
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▼aMucoviscidose▼xAspect psychologique▼xCas, E?tudes de. |
650
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▼a77.21 humanistic psychology.▼0(NL-LeOCL)077597729▼2bcl |
650
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▼aBrothers and sisters▼xDeath▼xPsychological aspects.▼2fast▼0(OCoLC)fst00839674 |
650
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▼aCystic fibrosis▼xPsychological aspects.▼2fast▼0(OCoLC)fst00886193 |
650
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▼aDeath▼xPsychological aspects.▼2fast▼0(OCoLC)fst00888643 |
650
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▼aParents of terminally ill children.▼2fast▼0(OCoLC)fst01053520 |
650
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▼aTerminally ill children▼xFamily relationships.▼2fast▼0(OCoLC)fst01147898 |
650
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▼aKind▼2gnd▼0(DE-588)4030550-8 |
650
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▼aChronische Krankheit▼2gnd▼0(DE-588)4010176-9 |
650
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▼aFamilienangeho?riger▼2gnd▼0(DE-588)4113507-6 |
650
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▼aPsychische Belastung▼2gnd▼0(DE-588)4176184-4 |
650
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▼aBewa?ltigung▼2gnd▼0(DE-588)4195461-0 |
650
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▼aChronische ziekten.▼2gtt |
650
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▼aKinderen.▼2gtt |
650
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▼aGezin.▼2gtt |
650
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▼aMedische psychologie.▼2gtt |
650
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▼aMEDICAL / Pediatrics▼2bisacsh |
655
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▼aPersonal Narrative.▼0(DNLM)D062210 |
655
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▼aCase studies. |
655
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▼aCase studies.▼2fast▼0(OCoLC)fst01423765 |
655
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▼aElectronic books. |
776
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▼iPrint version:▼aBluebond-Langner, Myra, 1948-▼tIn the shadow of illness.▼dPrinceton, N.J. : Princeton University Press, 짤1996▼z0691027838▼w(DLC) 96006800▼w(OCoLC)34355618 |
856
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▼3EBSCOhost▼uhttp://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&db=nlabk&AN=2461284 |
938
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▼aEBSCOhost▼bEBSC▼n2461284 |
994
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▼a92▼bN |