Orphanet Journal of Rare Diseases Orphanet Journal of Rare Diseases, 16(1):140. BioMed Central Ltd. Nijhuis, W, Franken, A, Ayers, K, Damas, C, Folkestad, L, Forlino, A, Fraschini, P, Hill, C, Janus, G, Kruse, R, Lande Wekre, L, Michiels, L, Montpetit, K, Panzeri, L, Porquet-Bordes, V, Rauch, F, Sakkers, R, Salles, J P, Semler, O, Sun, J, To, M, Tosi, L, Yao, Y, Yeung, E H K, Zhytnik, L, Zillikens, M C & Verhoef, M 2021, ' A standard set of outcome measures for the comprehensive assessment of osteogenesis imperfecta ', Orphanet Journal of Rare Diseases, vol. 16, no. 1, 140 . https://doi.org/10.1186/s13023-021-01682-y Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-16 (2021)