How My Life Is Unique: Sibling Perspectives of Autism
- Resource Type
- Journal Articles
Reports - Research
- Authors
- Burnham Riosa, Priscilla (ORCID 0000-0002-4791-6433); Ensor, Rebecca; Jichici, Brynn; Davy, Brittany
- Source
- Autism: The International Journal of Research and Practice. Aug 2023 27(6):1575-1587.
- Subject
- Autism Spectrum Disorders
Siblings
Children
Adolescents
Childrens Attitudes
Role
Expectation
Sibling Relationship
Family Environment
Family Relationship
- Language
- English
- ISSN
- 1362-3613
1461-7005
The impact of autism on the family is an area of study that merits further research attention. Much of the existing literature has focused on the parent perspective, with less emphasis on the experiences of other family members, particularly non-autistic siblings. This study aimed to explore the lived experiences of a sample of nine 8- to 17-year-old non-autistic siblings of children and youth on the autism spectrum. We interviewed siblings and analysed transcripts using interpretative phenomenological analysis. Our results revealed the following Group Experiential Themes: (1) "Role disparities, different expectations"; (2) "Connection and disconnection"; and (3) "Our family is (extra)ordinary." Our study findings highlight the unique and collective perspectives of siblings regarding their brother or sister on the spectrum within the broader family dynamic. We discuss the implications of these results on siblings of autistic children and youth.