Clinical audit research and evaluation of motor neuron disease (CARE-MND): a national electronic platform for prospective, longitudinal monitoring of MND in Scotland
- Resource Type
- Authors
- Dympna McAleer; David Buchanan; Gill Stott; Andrew Bethell; Kitty Millar; Dianne Fraser; Shuna Colville; Laura Cunningham; Giulia Melchiorre; Ian Morrison; Dorothy Storey; Richard Davenport; Ann Silver; Anthony Bateman; Siddharthan Chandran; Gillian Craig; Emily Beswick; Sharon Abrahams; George Gorrie; Carol Thornton; Laura Marshall; Alison McEleney; Moira Flett; Susan Stewart; Helen Lennox; Danielle Leighton; Harry Gordon; Janice Hatrick; Suvankar Pal; Jenny Preston; Laura Stephenson; Laura Sherlock; Judith Newton; Callum Duncan; Carolyn Webber; Robert Swingler
- Source
- Leighton, D, Newton, J, Colville, S, Bethell, A, Craig, G, Cunningham, L, Flett, M, Fraser, D, Hatrick, J, Lennox, H, Marshall, L, Mcaleer, D, Mceleney, A, Millar, K, Silver, A, Stephenson, L, Stewart, S, Storey, D, Stott, G, Thornton, C, Webber, C, Gordon, H, Melchiorre, G, Sherlock, L, Beswick, E, Buchanan, D, Abrahams, S, Bateman, A, Preston, J, Duncan, C, Davenport, R, Gorrie, G, Morrison, I, Swingler, R, Chandran, S & Pal, S 2019, ' Clinical audit research and evaluation of motor neuron disease (CARE-MND): a national electronic platform for prospective, longitudinal monitoring of MND in Scotland ', Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, pp. 1-9 . https://doi.org/10.1080/21678421.2019.1582673
- Subject
- Clinical audit
medicine.medical_specialty
Allied Health Personnel
Nurses
Disease
Access to Information
03 medical and health sciences
0302 clinical medicine
Physical medicine and rehabilitation
Resource (project management)
Patient-Centered Care
Epidemiology
medicine
Electronic Health Records
Humans
Motor Neuron Disease
Amyotrophic lateral sclerosis
Monitoring, Physiologic
Medical Audit
Data collection
business.industry
Data Collection
Research
Motor neuron
medicine.disease
medicine.anatomical_structure
Scotland
Neurology
Epidemiological Monitoring
Neurology (clinical)
Patient Participation
business
Delivery of Health Care
030217 neurology & neurosurgery
Patient centered
- Language
- English
Objectives: Launched in 1989, the Scottish Motor Neuron Disease Register (SMNDR) has provided a resource for prospective clinical data collection. However, in 2015 we aimed to evolve a system to al...