Walking the Path Together: Indigenous Health Data at ICES
- Resource Type
- Authors
- Evelyn Pyper; David Henry; Brian Slegers; Erika Yates; Jennifer D. Walker; Graham Mecredy; Sujitha Ratnasingham
- Source
- Healthcare quarterly (Toronto, Ont.). 20(4)
- Subject
- Databases, Factual
Community participation
media_common.quotation_subject
Indigenous health
Indigenous
Data governance
03 medical and health sciences
0302 clinical medicine
Political science
Health Services, Indigenous
Humans
030212 general & internal medicine
American Indian or Alaska Native
Data Curation
media_common
Ontario
030505 public health
Data curation
business.industry
Academies and Institutes
Community Participation
Public relations
Self-determination
Work (electrical)
0305 other medical science
business
PATH (variable)
- Language
- ISSN
- 1710-2774
Indigenous data governance principles assert that Indigenous communities have a right to data that identifies their people or communities, and a right to determine the use of that data in ways that support Indigenous health and self-determination. Indigenous-driven use of the databases held at the Institute for Clinical Evaluative Sciences (ICES) has resulted in ongoing partnerships between ICES and diverse Indigenous organizations and communities. To respond to this emerging and complex landscape, ICES has established a team whose goal is to support the infrastructure for responding to community-initiated research priorities. ICES works closely with Indigenous partners to develop unique data governance agreements and supports processes, which ensure that ICES scientists must work with Indigenous organizations when conducting research that involves Indigenous peoples.