Scale for the Assessment and Rating of Ataxia (SARA): Development of a Training Tool and Certification Program.
- Resource Type
- Academic Journal
- Authors
- Grobe-Einsler M; German Center for Neurodegenerative Diseases (DZNE), Venusberg-Campus 1, D-53127, Bonn, Germany. marcus.grobe-einsler@dzne.de.; Department of Neurology, University Hospital Bonn, Bonn, Germany. marcus.grobe-einsler@dzne.de.; Amin AT; German Center for Neurodegenerative Diseases (DZNE), Venusberg-Campus 1, D-53127, Bonn, Germany.; Faber J; German Center for Neurodegenerative Diseases (DZNE), Venusberg-Campus 1, D-53127, Bonn, Germany.; Department of Neurology, University Hospital Bonn, Bonn, Germany.; Völkel H; German Center for Neurodegenerative Diseases (DZNE), Venusberg-Campus 1, D-53127, Bonn, Germany.; Synofzik M; Department of Neurology, University Hospital Tübingen, Tübingen, Germany.; German Center for Neurodegenerative Diseases (DZNE), Tübingen, Germany.; Klockgether T; German Center for Neurodegenerative Diseases (DZNE), Venusberg-Campus 1, D-53127, Bonn, Germany.; Department of Neurology, University Hospital Bonn, Bonn, Germany.
- Source
- Publisher: Springer Country of Publication: United States NLM ID: 101089443 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1473-4230 (Electronic) Linking ISSN: 14734222 NLM ISO Abbreviation: Cerebellum Subsets: MEDLINE
- Subject
- Language
- English
Monitoring of disease severity is of great importance for treatment and management of clinical trials. The Scale for Assessment and Rating of Ataxia (SARA) is a frequently used, short and easily applicable clinical scale used to assess the severity of ataxia. The objective of our study was to develop a training and certification tool for the SARA. SARA scores were recorded according to a standardized protocol and rated by three clinical experts in consensus. Four hundred thirty-eight videos of 67 patients were included in the SARA training tool. The tutorial section demonstrates a complete SARA examination on a healthy control. In the training section, users can compare their ratings to consensus ratings and access a video library covering the complete SARA range. The tool also includes a section that allows optional certification. The SARA training tool provides comprehensive and standardized training material and certification to reduce variability in applying the SARA. Standardization aims to improve the quality of patient care and research in ataxia.
(© 2023. The Author(s).)